Not much has changed. The diazapam to help with the spasms, has definitiely made a difference, but I'm falling asleeep in mid conversation, or just about anywhere, like on the way to the bathroom, or when typing an email.
Regardless of the rejigged pain meds, diazapam and sleeping tablet, I'm still in pain. The intensisty varies and with it, how I feel I can cope with it at any one time.
Overall, I feel very weak. I'm going to try hard to get out of bed and sit in my armchair for an hour or two. I even took LittleBoo to school today. Then TeeenBoo and I did some housework. Then I drowsed on and off.
And now.... goodnight!
About Me
- Aliboo
- United Kingdom
- I'm a 47 yr old, Aliboo, well only biologically - in every other sense I'm only 25, esp in my heart. Amongst other things I'm a severely disabled wheelchair user, living independently in the UK with my seven year old daughter who has CP. Recently my 19 year old son has flown the nest. I strongly believe in trying to enjoy life and exp the here and now, leaving worry about tomorrow until then. Yet life is often complex and seldom straight forward, I'm in pain 24/7, and have a list almost as long as my arm of other 'things' including quite bad depression. I've only felt able to be more open about in the last year or so. My medication makes me very slow, tired and interferes with my thinking process. I reckon they can make me seem less intelligent, less aware, less interested or interesting! Sometimes it all feels too much, and I need to remember there are many good things happening too. I go to Uni where I'm studying part time for a degree, I'm a writer, I'm into Green issues, politics and personal development. I'm an ageing hippy, who works hard and loves life and the challenges and joys it presents. But more importantly I'm me - a woman, a mother, a daughter, a lover and a friend.
Followers
Small thoughts
- Life is soooo short, forgive quickly and mean it, take risks, love again, reach out, break rules, have endless compassion, laugh with joy, hug like you need to be hugged, say kind words, be positive in everything, always say please and thank you, see wonder in everything, give more than you take, value others, never regret anything that made you smile and just be yourself.
- 'Well-behaved women seldom make history." Laurel Thatcher Ulrich.
- Always forgive your enemies; nothing annoys them so much.
- I'll be a post-feminist in a post-patriarchy
- "The Earth provides enough to satisfy every man's need, but not every man's greed" - Ghandi
- "Of all the senses, common sense is the least common of all..."
- "Minds are like parachutes - they only function when open"
- All I ask is the chance to prove that money can't make me happy. ~Spike Milligan
- Aspire to inspire before you expire.
- "Forgive your enemies, but never forget their names." (JFK)
- "Sometimes the hardest thing and the right thing are the same" ~ The Fray
- You will never become who you want to be if you remain who you are!!
For mothers of a child with a disability
Madeleine
Copyright
2 comments:
Hang in there Ali. ((hugs)) Hope you get some relief soon.
I'm so sorry you are feeling so tired and weak and in pain. Thinking of you.....
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